7.08.2005

Mental Illness and Social Networks

Last week, in the wake of cult member Tom Cruise's disturbing comments about psychiatry, I came across a fascinating article in the Washington Post about a World Health Organization study on schizophrenia. The study, which was initially conducted in the 1970s and then repeated over a thirty year span, found that schizophrenia patients in poor Third World nations such as India did much better than in the US because of the family support and social networks that exist in the poorer countries:
In all, the study tracked about 3,300 patients, Sartorius said, and 30-year follow-ups confirmed the initial trends. The study spanned a dozen countries -- capitalist and communist, eastern and western, northern and southern, large and small, rich and poor.

The results were consistent -- and surprising. Patients in poorer countries spent fewer days in hospitals, were more likely to be employed and were more socially connected. Between half and two-thirds became symptom-free, whereas only about a third of patients from rich countries recovered to the same degree, Sartorius said.

Nigerian, Colombian and Indian patients also seemed less likely to suffer relapses and had longer periods of health between relapses. Doctors in poorer countries stopped drugs when patients became better -- whereas doctors in rich countries often required patients to take medication all their lives.
The reason for these surprising results? Cultural differences that led to different approaches to treatment:
Most people with schizophrenia in India live with their families or other social networks -- in sharp contrast to the United States, where most patients are homeless, in group homes or on their own, in psychiatric facilities or in jail. Many Indian patients are given low-stress jobs by a culture that values social connectedness over productivity; patients in the United States are usually excluded from regular workplaces.

Indian families sit in on doctor-patient discussions because families are considered central to the problem and the solution. In America, doctor-patient conversations are confidential -- and psychiatrists primarily focus on brain chemistry.
Thus, schizophrenics in India, Nigeria and Colombia are more likely to end up living productive lives within mainstream society, instead of being ostracized and sent to mental institutions.

Findings such as these, which demonstrate that social factors have just as much to do with recovery as psychosomatic drugs, could be interpreted as a threat to large pharmaceutical companies in the developed world. However, I see successful treatment of illnesses such as schizophrenia as a healthy combination of medication and therapy, which by extension includes family and societal support. What can we learn from the developing world?

First of all, mental illness in the US has not reached the point where it can be discussed freely and openly. Most of us know someone who has dealt with depression, but these cases are usually kept private and there is a lack of education and awareness. I can cite two well-known examples from football: Barret Robbins of the Oakland Raiders and Wyatt Sexton of FSU. Both players suffered from manic episodes stemming from bipolar disorder, and in both cases, media attention focused on their bizarre behavior rather than the fact that both suffered from bipolar disorder, which affects an estimated 2 million Americans (with many more cases undiagnosed). In these cases and others, the person with the illness is portrayed as being at fault for not "taking their medication," as if that is the cure-all. Tom Cruise's repulsive comments only serve to further alienate patients.

While I don't think that American culture will fully evolve such that family ties are as strong as in Latin America, for example, education is needed so that public perceptions on mental illness can be changed. Only then will family and community members be able to accept and support the millions of Americans suffering from treatable mental illnesses.

Comments:
Great post, Juanson. I don't have much time to go into detail here, but suffice it to say that I agree much more needs to be done to dispel the myths associated with mental illness. First and foremost we need to diminish the social stigma associated with mental illness. This challenge is complicated by the fact that relatively little is known about how to treat mental illness as opposed to fighting a bacterial infection, for example. Without clear medical answers, people are apt to "blame the victim(s)", who in the case of mental illness also happens to be the patient AND the friends and family of patients. Social stigmas are hard to change, but hopefully public knowledge and understanding will improve as more people learn about mental illness and doctors and scientists learn more about the causes and treatments of such diseases.

NB - I don't have the study in front of me, but I know there are reports out that estimate the economic impact of mental illness. It's in the billions of dollars in terms of lost productivity due to depression alone.
 
Gomez, excellent post. This topic definitely needs to be given more attention.

I too have been thinking about how important it is to eliminate the social stigma behind mental illness in North America.

Something badly needs to be done to educate the public on the topic. People are being medicated, but are not receiving the societal support needed to complement this treatment.

In Buenos Aires, such a stigma doesn't exist. People are quite open about their mental illness, going to a psychologist, and the medication they are on. Some people simply go to the psychologist as a 'preventive measure', like one goes to the dentist for a cleaning.

I know very few people in North America that are comfortable revealing that they seek therapy. Here, people brag about how good their psychologist is, and insist that you give them a shot.

From what I have witnessed in Toronto, it's incredible how much homelessness is due to mental illnesses that families and society are unwilling to treat humanely - ie with understanding and affection.

Furthermore, in line with what the article says, it is apparent that the incidence of homelessness due to mental illness is far more infrequent in developing countries than in the developed world. In the past 15 years, homelessness has reached epidemic proportions in Toronto. The city's most stigmatized population is not only its poorest, but also in desperate need of therapy, family and friends.
 
Landry,

In terms of Robbins, he wasn't just suffering from bipolar. He had used steriods and had an alcohol problem. Unfortunately, the killer combination of the three caused him to become estranged from his family and have several dangerous episodes. It's tough to place blame squarely on his shoulders, but with the support of his family and an extended social network, he may have ended up with a better fate than being on his deathbed facing attempted murder charges.

However, I do agree with you that addicts need to want to help themselves, but this is often the hardest thing for someone in the depths of depression or addiction to do.
 
Christian,

Good article. I have not been to Colombia or Nigeria, but I am living in India and can comment on that. India generally has stronger communities and families than the United States. In the U.S., I have seen so many people who are so lonely. In contrast, I have seen less loneliness in India. (I guess with more than a billion people, it’s not that hard to have company!)

Jokes aside, people in India’s slums (who live in wretched conditions), survive because of the close-knit communities that serve as large families. But the strong communities/families are not just in the slums; I’ve seen strong communities and families in the middle and upper classes as well.

These strong communities give support to people suffering from mental illnesses, and this is one reason why people with bipolar disorder and schizophrenia may find it easier to cope in a place like India than in the United States.
 
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